Sixth Cycle and Counting
Apologies for the long gap between posts – things have been a little hectic, however, I am pleased to report that no news is good news!
Everything seems to be going well. Alpesh completed cycle five and had his rest week last week where he savored the luxury of drinking some beer/wine and dining out. He started his sixth cycle on Monday, March 16th so he’s on his best behavior again. We have not seen any side effects so far and hope that will continue until he finishes all eight cycles. In fact he has now decided against taking the anti-nausea medication that is normally given during the Velcade infusion as he seems to fair better without it. His philosophy being, the less medication the better.
We had our three weekly appointment with Dr Z on Tuesday, March 17th. Nothing new to report other than all markers remain normal. Dr Z is recommending that we do some tests at the end of the eight cycles to determine next course of action, if any.
Hair status – because that’s the hottest topic right now J There are definitely signs of life – too early to celebrate though. Luckily he didn’t lose any hair from his eyebrows or eyelashes so it hasn’t had much impact on the children. (Thank you all for the encouraging/funny comments regarding lack of hair) J
There are definitely some benefits though … he doesn’t have to shave every day which gives him more time to do other things …
[By Sima]
alexfl
March 19th, 2009 at 3:37 pm
Hi there,
I just happen to come across your website and read it. My husband found out 11 months ago he had MM. He had 5 cycles dex/revlamid then 2 rounds of velcade. He had somewhat of a problem harvesting took 2 extra days. He was able to get a brand new shot of a new drug that got approval that week.That did the trick. Nuepogen didn’t work. He had a stem cell Jan. 22 09 and did great. He is 56 days post transplant and went to see his onocologist today and his bloodwork was perfect. Jusrt thought I would share. He is a very young 61. It is really a long journey. Prayers and positive attitude do work. Feel free to write back. The best of luck to you and your family,
Mary Jo
March 19th, 2009 at 9:43 pm
Hello Alpesh:
Very elated to hear about the progress you are making. You are a strong man and are very blessed with a loving family. Sima thank you for keeping the blog posted.
March 24th, 2009 at 1:18 pm
very good new
chin up
suresh mama
March 25th, 2009 at 10:11 pm
Hello,
You may or may not have seen the forum I recently started that is 100% dedicated to Multiple Myeloma. Please take a moment to sign up, tell us your story, and support others like yourself. If you like the site please add a link to us as well… http://www.myelomaforums.com
Thanks,
Andy